Jacobs Journey

Jacob in the Newark Advertiser.

Posted in Causes, Charity, Latest News, Media by Dunx on August 17, 2009
Mr David Giles (32) and Miss Vicky Tasker (29) of Lowfield Lane, Balderton, who have been told a bone-marrow match has been found for their son, Jacob (1)

Mr David Giles (32) and Miss Vicky Tasker (29) of Lowfield Lane, Balderton, who have been told a bone-marrow match has been found for their son, Jacob (1)

Article:

A boy whose only chance of surviving a rare genetic condition is a bone-marrow transplant has received the gift of life for his first birthday.
Jacob Giles, of Lowfield Lane, Balderton, has Wiskott-Aldrich syndrome, an inherited disorder of the immune system and was diagnosed in May.

This week his parents, Miss Vicky Tasker and Mr David Giles, were told a 100% bone-marrow match had been found.

Miss Tasker (29) said: “It’s so scary but we are so happy. It’s a huge relief to know this is not going to drag on for years and possibly be too late.

“It was his first birthday yesterday — what better present?

“This is a priceless wonderful gift of life and a cure to the endless symptoms he has suffered.”

Mr Giles (32) said: “I think we had been prepared for it to be years. You don’t really hear about a match being found so quickly.”

The family marked Jacob’s birthday with a party, where his presents included a tricycle, before spending the day at Rand Farm Park, Wragby.

Jacob has been referred to the bone-marrow transplant team at Great Ormond Street Hospital, London, where specialists will decide if he is well enough for the procedure.

Miss Tasker said doctors would have to look at the waiting list before a date could be set.

She said: “We have the most difficult part to get through now and we know it’s going to be hard.

“He is going to be as ill as you could get and will have to spend around two months in Great Ormond Street away from our other children and family.”

Miss Tasker’s mother, Mrs Kim Eddowes, of Louth, will move into the family home to look after Jacob’s half brothers, Dylan (12) and Morgan (8).

Jacob’s condition is characterised by recurrent infections, eczema and low numbers of circulating platelet cells, which increases susceptibility to bleeding. There is also a risk sufferers may develop cancer.

He is on several types of antibiotics and has weekly blood transfusions.

Miss Tasker is supporting Mrs Ann-Marie Spence in her campaign to encourage more people to become potential donors.

See the article in the Newark Advertiser on Jacobs Bone Marrow Match:

http://www.newarkadvertiser.co.uk/template/temp1.asp?id=263988c2-d94e-102c-966b-fdf1bde13151

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